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Cure JM Foundation Privacy Policy

We take privacy, security, and complying with data protection and privacy laws seriously. We strive for transparency about how we collect, use, share, process, and protect your personal information when you use our website.

Please review this information carefully.

Donor privacy

Cure JM Foundation fully respects your privacy and appreciates your trust. We will not sell, trade or rent your personal information to any third party without your permission.

If you make a donation, we may send you occasional updates via email or mail. If you prefer not to receive these updates, please email us at . We will remove your name from the list. If you name an "honoree" for your donation, we will do our best to notify this person that you made a donation in their honor. If you prefer that we do not notify the honoree, please let us know at .

Information Collection

For each visitor to our Web site, our Web server does not automatically recognize information regarding the domain or email address. We are only able to see aggregate information regarding the pages which are accessed. This information is used to improve the content of our Web site.

We collect the email addresses of those who communicate with us via email, as well as information volunteered by the customer, such as survey information, site registrations, message board participation, and specifically, information provided on the patient registry and Team JM registry. This information allows us to keep registrants and correspondents apprised of the latest Cure JM news via email, text, paper mail or phone. If you prefer not to receive these updates, please email us at .

The patient registry also allows us to build a database of juvenile myositis patients. This information will be used as part of a demographic survey to determine if there are clusters of children affected by JM in the same geographic area. It will also allow us to determine the average age of disease onset, the most common initial symptoms as well as the percentage of children with JM by gender. The information you provide will be used exclusively for research, and will not be shared with any other organization or business not connected with this research.

Use of Cookies and Remarketing

This website uses Facebook remarketing, which tracks the effectiveness of ads shown on Facebook that direct to our website, or third-party sites (eg. CrowdRise, Event Bright, etc.). Remarketing is done through the use of cookies, which allow websites to recognize you and keep track of your preferences.

Both the use of cookies and remarketing gives us a better idea of how effective our Facebook informational advertising is to you, to make sure it is timely, relevant and helpful for you.

Data collected will be used in accordance with our own privacy policy, as well as Facebook privacy policies.

Here is Facebook’s privacy policy: https://www.facebook.com/policy.php

You can opt-out of Facebook remarketing by visiting this link:
https://www.facebook.com/ads/website_custom_audiences/

Have questions? Email us at .

Online Security

Cure JM has industry-accepted encryption technology to protect your online credit card information. You can also make a donation by mailing a check to Cure JM Foundation. For more information about credit card security or other payment options, please email us at . Regarding the security of customer information, all customer data we collect is protected from unauthorized access.

Unfortunately, no transmission of data over the Internet is guaranteed to be completely secure. It may be possible for hackers or other third parties not under the control of Cure JM Foundation to intercept or access transmissions or private communications unlawfully. While we strive to protect your personal information, Cure JM Foundation cannot ensure or warrant the security of any information you transmit to us. Any such transmission is done at your own risk.

Message Boards

Message boards and chat rooms may be available to visitors to the Cure JM Site. The forums will identify visitors. Please remember that any information you disclose in these areas becomes public information. Accordingly, you should always exercise caution when deciding to disclose personal information.

Links to Other Sites

It is important to note that Cure JM Foundation contains links to sites other than www.curejm.org, and that those sites may not follow the same privacy policies as Cure JM Foundation. These sites may send their own cookies to you, and may collect data and make uses of data that Cure JM does not.

Policy Changes

Our Privacy Policy is intended to provide you with the safest and most secure experience possible. Since offerings and technologies change, we reserve the right to change, add or remove portions of our Policy at any time without prior notice. If we make any changes to our Privacy Policy, we will post the changes directly on this policy page so that you are always aware of what information we collect and how we use it. Please periodically review our Privacy Policy for changes. We will also note the date the Policy was last modified at the bottom of this page. If you have any questions on our Privacy Policy, or would like further clarification, please email us at .

Date last modified: October, 2019