Mackenzie

Mackenzie

This is my daughter Mackenzie. She is 6 years old but got diagnosed with jdm at the age of 4. She has struggled through this disease for the whole 2 years since diagnosis. We noticed something was seriously wrong when she wouldn’t even move. She was playing soccer at the time and she would just let the players run into her and she would just cry and not move. When we feel like she is getting into remission, something else occurs. She is on all medications possible for the disease and still high dose steroids. It is a very debilitating and unbelievable disease. My daughter is currently a patient at Cook Childrens in Ft Worth. Tx and also a patient at the National Institutes of Health with Dr. Rider and Dr. Kim.